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The latest advocacy efforts on access to healthcare

November 7, 2023 | by sau1admin

Fisa Foundation

Advocacy Efforts to Advance Accessible Healthcare for People with Disabilities

FISA Foundation works to increase access to high-quality healthcare for people with disabilities and raise awareness about the health disparities that people with disabilities face. Check out the current efforts to increase equitable healthcare for people with disabilities.

How Disability Advocates Influenced Policy Change at the NIH

Text above a clock, syringes, and a stethoscope reads Nothing About Us Without Us: How Disability Advocates Influenced Recent Policy Change in Public Health Research.

Earlier this fall, the NIH designated people with disabilities as a population that experiences health disparities. The technical designation opens the door to federal funding from the NIH for research on people with disabilities, allowing greater insight into health challenges that people with disabilities experience. Leading up to the NIH's decision, disability advocates and researchers put forth significant efforts to express their endorsement of the designation.

Read our story about how researchers, healthcare workers, and advocates in the disability community quickly mobilized to push the NIH to ultimately grant this much-needed designation. Thank you to all the advocates in the disability community who have relentlessly pushed for this change!

Read Here


Submit Public Comment to Address Disability Discrimination in Healthcare by Nov. 13th

The US Department of Health and Human Services (HHS) is now seeking public input on the proposed rule to update Section 504 of the Rehabilitations Act of 1973.

The rule change aims to address disability discrimination in healthcare funded by federal dollars, including funds used by hospitals and healthcare providers that accept Medicaid or Medicare. This is an opportunity for the disability community to influence policy change.

It’s important for the disability community to share experiences of health discrimination and to voice their support of the rule change. Public comments must be received by 11:59 p.m. (Eastern) on November 13, 2023.

Submit Public Comment


The National Survey on Disability and Health is out!

Banner. Text below images on different people reads Your Voice Matters Participate in the 2023 National Survey on Health and Disability (NSHD) based at the University of Kansas

Based at the University of Kansas, the National Survey on Disability and Health aims to document the experiences of people with disabilities across a variety of issues, including access to health care, housing, long COVID, transportation, employment, and connection to community.

This project gives voice to the concerns of people with disabilities. The survey relies on voluntary participation of people with disabilities and the engagement of disability researchers, advocates, and service providers. The survey is available via text message, email and by phone. Fill out the short form linked below, and the survey will be sent to your device.

Access the Survey Here


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FISA Foundation | FISA Foundation, 535 Smithfield Street, Suite 710,
Pittsburgh, PA 15222

Latest Posts

Jun

21

Speak Up Day: Arc of Chester County

Date Fri. June 21, 2024, 10AM to 3:30PM (Eastern Time)
Location Arc of Chester County 900 Lawrence Drive West Chester, PA 19380

Fri. June 21, 2024 10AM - 3:30PM

Arc of Chester County
900 Lawrence Drive
West Chester, PA 19380 Free Admission
Lunch, and
Snacks Our Day Together 10 am Che…

Click on the event title to read more


May

31

SAPNA Speak Up Day: KenCCID

Date Fri. May 31, 2024, 10AM - 4PM (Eastern Time)
Location KenCCID 9650 Ashton Road, Suite 202 Philadelphia PA 19114

Fri. May 31, 2024 10AM - 4PM

KenCCID
9650 Ashton Road, Suite 202
Philadelphia PA 19114 Free Admission
Bruch, Lunch, and
Refreshments Our Day Together 10 am…

Click on the event title to read more


Apr

12

Power Talk with ODP

Date Fri. Apr. 12 2024, 10am to 12pm (Eastern Time)
Location Zoom (Link and phone info in description)

Fri. Apr. 12 10am to 12pm Join special guest from ODP, Candi Walton, who will share the results of the 2023 Supporting Families Survey. Hear about what people with disabilities and the…

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Apr

25

Let's Talk About Your Vision for YOUR Everyday Life!

Date Thurs. Apr. 25 2024, 3 to 5pm (Eastern Time)
Location 139 S. Main St. Washington, PA 15301

When? Thurs. April 25, 20243 to 5pm Where?Washington Park Main Pavilion 139 S. Main St. Washington, PA 15301 Who?This event is open to the public.
People with disabilities and their gues…

Click on the event title to read more


Apr

25

Let's Talk about Your Vision for YOUR Everyday Life

Date Thurs. April 25, 2024, 5:30 to 7:30pm (Eastern Time)
Location So Much To Give Cafe 3401 W Skippack Pike Cedars PA 19423

When? Thurs. April 25, 20245:30 to 7:30pm Where?So Much to Give Cafe 3401 W. Skippack Pike Cedars, PA 19423 Who?This event is open to the public.
People with disabilities and their guest…

Click on the event title to read more


Apr

17

Getting Your Own Place: Myths and Facts

Date Wed. April 17 2024, 7 to 8:30pm (Eastern Time)
Location Zoom (Link and phone info in description)

Wed. Apr. 17 7 to 8:30pm Join us to learn about Housing from SAU1 Power coaches! The Power Coaches will share some common myths about housing for people with disabilities, and then hel…

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Apr

18

Getting Your Own Place: Myths and Facts

Date Thurs. Apr. 18 2024, 10:30am to 12pm (Eastern Time)
Location Zoom (Link and phone info in description)

Thurs. Apr. 18 10:30am to 12pm Join us to learn about Housing from SAU1 Power coaches! The Power Coaches will share some common myths about housing for people with disabilities, and th…

Click on the event title to read more


Apr

29

All About Rights!

Date Mon. April 29 2024, 5 to 7pm (Eastern Time)
Location Community Library of the Shenango Valley 11 N. Sharpsville Ave. Sharon, PA 16146

When? Monday, April 29, 20245 to 7pm Where?Community Library of the Shenango Valley 11 N. Sharpsville Ave. Sharon, PA 16146 Who?This event is open to the public.
People with disabilities…

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Knowledge is power, use it to connect with us!

Learn more about Self Advocates United as 1’s (SAU1) work, being a self advocate, and
speaking up for people’s rights

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SAU1
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Meadville PA 16335

Email SAU1 at info@sau1.org.
Give Carla at SAU1 a call at
724 588 2378.

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