The autistic and nonspeaking communities are often left out of setting priorities for funding research. This means that research often doesn’t reflect our entire community. Research about us should benefit us - we’ve got two ways you can help make that happen.
One way is to submit comments to the Interagency Autism Coordinating Committee (IACC)! The IACC advises on federal funding for autism research. They make recommendations on how autism research funding is prioritized.
Here is how to submit a public comment to the IACC:
We also have a toolkit that goes into detail about the process in Easy Read and plain language! You can get ideas for potential topics from ASAN’s past comments. Comments are due September 28th!
The other way we’re encouraging you to share your opinions is writing in response to a request for information from the National Institute on Deafness and Other Communication Disorders (NIDCD).
The NIDCD is looking for people who care about communication for AAC users and nonspeakers to respond to these questions:
You can answer some questions, or all of them! Answers can be from a personal, service delivery, or research perspective. This request for information is inclusive of nonspeakers who are not autistic as well.
We encourage people submitting answers to review Communication First’s Plain Language explainer about research, including research about AAC.
Communication First also made a guide sharing why the request for information matters to AAC users. It has questions to help you think about what you’d like to say. It also explains how to submit your answers.
Submit your input. If you can’t use the form, it provides an email to send your answers.
Comments are due September 15th.
Autistic people, nonspeakers, and autistic nonspeakers’ input in what should be researched is long overdue. Let’s make sure the IACC and NIDCD know - when it comes to research, there must be nothing about us, without us!
To learn more about The Autisitic Self Advocacy Network (ASAN) check out their website.
Nov
8
Fri. Nov. 8 2024, 10am to 12pm (Eastern Time)
Zoom (Link and phone info in description)
Fri. Nov. 8 10am to 12pm Do you have questions about or issues with the supports and services for people with intellectual disabilities and or autism (ID/A) in PA? Join us for our mon…
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Oct
16
Wed. Oct. 16, 2024, 1 to 3pm (Eastern Time)
The Arc, DuBois Recreation and Respite Club, 36 Hoover Ave. DuBois PA 15801
Learn About: Registering to vote, Your voting rights, Why your vote is important Mail-in or absentee ballots Voting in person Building a voting community What to do if you have problems voti…
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Oct
21
Mon. Oct. 21 2024, 1 to 2:30pm (Eastern Time)
Zoom (Link and phone info in description)
Mon. Oct. 21 1 to 2:30pm Learn About: Registering to vote, Your voting rights, Why your vote is important Mail-in or absentee ballots Voting in person Building a voting community Wh…
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Nov
13
Wed. Nov. 13, 2024, 10 to 11:30am (Eastern Time)
Chartiers Township Community Center, 2013 Community Center Drive, Houston, PA 15342
When? Wed. Nov. 13, 202410 to 11:30am
Where?Chartiers Township Community Center
2013 Community Center Drive
Houston, PA 15342
Who?This event is open to the public.
People with disabiliti…
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