Survey on Autism Healthcare Transitions

April 24, 2025 | by sau1admin

We are proud to share the information below from Drexel University’s A.J. Drexel Autism Institute about an opportunity for autistic self advocates and parents or caregivers of autistic folks to speak up about transitioning from pediatric to adult healthcare.

Hello,

We’re reaching out from Drexel University’s A.J. Drexel Autism Institute to invite participation in a research study focused on improving healthcare transitions for autistic individuals moving from pediatric to adult medical care.

Whether you are an autistic individual (age 15+) who has already gone through, is currently navigating, or will soon experience this transition—or a parent or caregiver supporting someone through it—your voice is essential.

Your experiences will help inform the development of physician training programs aimed at making care more inclusive, accessible, and autism-informed. This is an opportunity to directly shape how healthcare professionals support autistic individuals during one of the most challenging and overlooked parts of care.

Why participate?

• Share your experience with the transition to adult healthcare
• Help identify challenges and gaps in support
• Help shape physician training by sharing insights that will be used to improve care for autistic individuals

Who can participate?

• Autistic individuals (15+) who are currently undergoing, planning for, or have completed the transition to adult healthcare
• Parents or caregivers of autistic individuals at any stage of this transition process

What to expect:

• A one-time online survey (10–30 minutes)
• Questions about your experiences, what helped, and what could have made the transition smoother
• You’ll also have the chance to enter a raffle to win a gift card (up to $100)

Go to the survey here:

• Survey for Autistic Individuals: https://redcap.drexel.edu/redcap/surveys/?s=4LEYW9F7AHPRYW9W
• Survey for Caregivers: https://redcap.drexel.edu/redcap/surveys/?s=Y7LPKFHH8NWEHYYL

If you have any questions, please contact Lydia Simon at ls3624@drexel.edu.

Warm regards,

The A.J. Drexel Autism Institute Research Team