DRP Opposes the U.S. Senate Better Care Reconciliation Act

Disability Rights Pennsylvania Opposes the United States Senate Better Care Reconciliation Act

As a leader in the advancement of the civil rights of people with disabilities for forty years (40), Disability Rights Pennsylvania (DRP) is opposed to the Better Care Reconciliation Act introduced today by the United States Senate (Senate).  We are deeply concerned about the direction Congress is headed and the impact this legislation will have on rights, independence, and health of individuals with disabilities.  Today, on the eighteenth anniversary of the historic Olmstead Supreme Court decision that ensured that individuals with disabilities must receive services in the most integrated setting, the United States Senate has proposed a bill that will force people with disabilities to lose access to health care and community based supports.  This bill decimates the promise of Olmstead that allows people with disabilities to participate and thrive in their communities.

The Better Care Reconciliation Act ensures that people with disabilities will lose access to critical health and mental health care.  The decision to allow states to either Block Grant or create a Per-Capita payment will result in the program being eligibility based instead of an entitlement.  Individuals will only get services if funding is available, and if there is not enough funding then individuals will be placed on a waiting list.  Waiting lists for services will grow exponentially and individuals with disabilities could be placed in life threatening situations.  This bill will result in even less funding available over time than what the House bill proposed.

In addition, there is still a requirement to provide institutional based care.  This bill will all but ensure that Pennsylvania will not have enough funding available for Home and Community Based services and supports in any way that allows people to meaningfully participate in their communities or work.  Optional services such as employment, person driven services and home and community based long-term supports would not be required to be provided by the state.  People with disabilities will have no guarantee that any home and community based services will be available ten years from now.

We call on the Senators in Pennsylvania to stand up for the promise of Olmstead and replace this bill with legislation that supports the needs of people with disabilities by retaining the current Medicaid financing system.

For more information about the rights of people with disabilities visit www.disabilityrightspa.org.


Posted Via Information provided by Disability Rights Pennsylvania.


Let’s Speak Up! and Let’s Get to Work!

Let’s Speak Up! and Let’s Get to Work!

People with disabilities and allies are invited to join us for conversation and a Free meal!

Let’s Talk About:

Self Advocacy

Self Advocates and Advocates

Everyone’s Rights

After We Eat, Let’s Talk About:

Getting ready to work

Looking for and finding a job

Applying and Interviewing

Support and accommodations

Keeping your benefits

Who can help


When we learn new things, we are powerful!


Reserve your place by June 7th! Seats are limited!

Call Regina at 724-456-1460 OR email regina@sau1.org

Tell Regina the day and place that works best for you.

Tuesday June 13, 3:30 to 7:30 pm at Hoss’s Steak and Seafood

                           2432 PA-257, Cranberry, PA 16319


Wednesday June 14, 3:30 to 7:30 pm, Hoss’s Steak and Seafood

     18817 Smock Hwy, Meadville, PA 16335


Meet Power Coach

Sam “the Man” Maxwell

Sam has been involved with SAU1 for about 10 years now. He started back when it was under the umbrella of Vision for  Equality. He came back when SAU1 staff called him one day asking him if he wanted a job doing office work, which led him to be a power coach as well.

Right now Sam has a couple of jobs with SAU1. He does office work like laminating, shredding and other tasks at the Greenville office. He is also a power coach for the Self Advocacy Power Network for All (SAPNA) which is managed by SAU1. Sam travels to our meetings to learn material and practice his skills so he can coach others on things they need to know, like “Let’s Speak Up!” and “Let’s Get to Work!”.

Sam says he really likes working for SAU1 because it’s a good job that allows him to help other people stand up and advocate for themselves. He likes to travel as a coach to tell others his story and listen to their stories. It’s important to Sam that he makes a difference by coaching and it gets others to stand up for themselves because he stands up for himself by example.


The Self Advocacy Power Network for All (SAPNA) is funded and approved by the PA Office of Developmental Programs (ODP) and managed by Self Advocates United as 1, Inc.  Email info@SAU1.org.


To download this flyer, to give to someone who may not have internet access, please click HERE.



A Self-Advocate’s Guide to Medicaid

About Medicaid

Medicaid is the biggest health care program in the country. It’s an important part of the United States health care system. But a lot of the information out there about Medicaid and attempts to change it can be difficult to understand and navigate. That’s why ASAN is proud to announce the release of their plain language resource “A Self-Advocate’s Guide to Medicaid.” This resource was developed in collaboration with the Autism Services, Education, Resources and Training Collaborative (ASERT), and with funding from the Special Hope Foundation.


The Self-Advocate’s Resources

This resource is the third of several that ASAN is developing to equip self-advocates to participate in important conversations about our lives and the services we rely on. The Medicaid toolkit is available in two versions:


  • The Easy Read Edition. The Easy Read version is divided into six parts, each containing one subject discussed in the toolkit: Medicaid introduction and background, Who Can Get Medicaid?, What Does Medicaid Pay For?, Medicaid funding, What Could Happen to Medicaid?, and a summary and glossary explaining the terms we use in the toolkit. The Easy Read version uses pictures along with text, and has more white space.


  • A Plain-Text Version for either those with vision-related disabilities or those who would prefer a version without accompanying graphics. The Plain Text Version is available as one document, or in individual parts.


Self-Advocate’s Medicaid Resources

Easy Read Resources

Just click the link of what you are interested in below to view or download the Easy Read resource.

  1. Medicaid Introduction and Background
  2. Who Can Get Medicaid
  3. What Does Medicaid Pay For
  4. Medicaid Funding
  5. What Could Happen to Medicaid
  6. Summary and Glossary


Plain Text Resources

Just click the link of what you are interested in below to view or download the Plain Text resource.

Complete Medicaid Toolkit

  1. Medicaid Introduction and Background
  2. Who Can Get Medicaid
  3. What Does Medicaid Pay For
  4. Medicaid Funding
  5. What Could Happen to Medicaid
  6. Summary and Glossary


*Resources Courtesy of ASAN with collaboration of ASERT.