Envisioning the Future: Allies in Self-Advocacy

The Future of Self-Advocacy

The Administration on Intellectual and Developmental Disabilities (AIDD) is the federal agency that supports the developmental disabilities network. The network includes Developmental Disabilities Councils (DD Councils), University Centers for Excellence in Developmental Disabilities (UCEDDs), and Protection and Advocacy systems (P&As). AIDD held nine regional summits in 2011 and 2012.

The goals of the summits were to:

  1. Find out what is happening in the states on self-advocacy
  2. Make state team plans to strengthen self-advocacy
  3. Make national recommendations to strengthen self-advocacy

This is a great piece from aucdnetwork outlining the goals and path of the self-advocacy civil rights movement. This video is being featured because SAU1 attended the Columbus summit and one of our board members Carolyn Morgan is featured in this video.


*This video is being distributed freely to help disseminate information, and educate people about Self-Advocacy. SAU1 does not own this video, and all credit is given to the original author. Because this information is being distributed freely for educational purposes this would fall under fair use. You can view source citations and fair use definition HERE.

A Self-Advocate’s Guide to Medicaid

About Medicaid

Medicaid is the biggest health care program in the country. It’s an important part of the United States health care system. But a lot of the information out there about Medicaid and attempts to change it can be difficult to understand and navigate. That’s why ASAN is proud to announce the release of their plain language resource “A Self-Advocate’s Guide to Medicaid.” This resource was developed in collaboration with the Autism Services, Education, Resources and Training Collaborative (ASERT), and with funding from the Special Hope Foundation.


The Self-Advocate’s Resources

This resource is the third of several that ASAN is developing to equip self-advocates to participate in important conversations about our lives and the services we rely on. The Medicaid toolkit is available in two versions:


  • The Easy Read Edition. The Easy Read version is divided into six parts, each containing one subject discussed in the toolkit: Medicaid introduction and background, Who Can Get Medicaid?, What Does Medicaid Pay For?, Medicaid funding, What Could Happen to Medicaid?, and a summary and glossary explaining the terms we use in the toolkit. The Easy Read version uses pictures along with text, and has more white space.


  • A Plain-Text Version for either those with vision-related disabilities or those who would prefer a version without accompanying graphics. The Plain Text Version is available as one document, or in individual parts.


Self-Advocate’s Medicaid Resources

Easy Read Resources

Just click the link of what you are interested in below to view or download the Easy Read resource.

  1. Medicaid Introduction and Background
  2. Who Can Get Medicaid
  3. What Does Medicaid Pay For
  4. Medicaid Funding
  5. What Could Happen to Medicaid
  6. Summary and Glossary


Plain Text Resources

Just click the link of what you are interested in below to view or download the Plain Text resource.

Complete Medicaid Toolkit

  1. Medicaid Introduction and Background
  2. Who Can Get Medicaid
  3. What Does Medicaid Pay For
  4. Medicaid Funding
  5. What Could Happen to Medicaid
  6. Summary and Glossary


*Resources Courtesy of ASAN with collaboration of ASERT.

SAU1 Voting Teleconference Summary

Voting Rights

Everyone has the fundamental right to vote, and everyone has the right to get needed assistance.


Voting ID Requirements

A big voting issue recently is Voter ID Laws in Texas. On April 10, 2017, SB 14 (SB 14 is the law enacted by Texas Legislators) the District Court has once again ruled that the SB 14 law is intended to discriminate against minority voters in Texas. This ruling for SB 14 has set precedent for other states with the case law “Texas NAACP v. Steen” (consolidated with “Veasey v. Abbott”). For more information about this law CLICK HERE.

That being said, there are only 2 times when trying to vote that it is mandatory to show ID. You need to show ID when you go to vote for the first time, and you need to show ID if you go to a polling place that you have never been to before. If you have already voted in the past, and you have voted at the polling place before you do NOT have to show ID.

If you feel like you are being forced to show ID at a polling place in an illegal manner, Please call the hotline number listed below.


Polling Place Accessibility

Last week in Washington County, 39 surveys were completed for inaccessible polling places. Those surveys were sent to the state for review. If you visit a polling place and it is inaccessible for any reason please let us know. A polling place would be considered inaccessible if there is no wheel chair ramp, if it doesn’t have at least one accessible voting machine or computer, or if there is no one there to accommodate the needs of somebody with a disability.

If your polling place is inaccessible, or if one of your friends tell you their polling place is inaccessible, please call the hotline number below and report the polling place. This will help your communities by trying to get those places accessible for everyone’s needs.


Disability Rights Pennsylvania Hotline

Disability Rights Pennsylvania Hotline 1-800-692-7443

Pennsylvania Disability Funding Rally

Where is the Rally?

Harrisburg Capitol Rotunda

North 3rd Street, Harrisburg PA 17120


When is the Rally?

Monday June 5 2017, 11:00 AM


Who is the Rally for?

People with disabilities, Family members, Friends, Disability Organizations, Advocates


Support Disability Funding in Pennsylvania

Join advocates from across the state to advocate for fair funding for Pennsylvanians with disabilities.

Participating groups include:

PA House Autism & Intellectual Disability Caucus | Disability Rights Pennsylvania | Institute on Disabilities Temple University | PAR | RCPA | Self Advocates United as 1 | Speaking For Ourselves | The Arc of PA and its 33 chapters | The PA Waiting List Campaign | The Provider Alliance | UCP of PA and Chapters | Vision for EQuality


You Live Here.

You Work Here.

You Matter.

Make Yourself Heard.



For more information contact

The Arc of PA: Maureen Cronin

mcronin@thearcpa.org  717 – 234 – 2621

Vision for Equality: Maureen Devaney

mdevaney@visionforequality.org and

Dee Coccia



View / Download Original Flyer




Are These Needs Special? #NotSpecialNeeds

Are These Needs special?

*NOT SPECIAL NEEDS | March 21 – World Down Syndrome Day | #NotSpecialNeeds

Words are important; they represent the alphabet of our culture. If we want to change our culture then we must start by reflecting on the words that we use and what they reveal about how we think. We need to educate ourselves and others about how changes in language can demolish prejudice, change our mindsets and, as a consequence, our reality.

 Ask yourself: what “special needs” does a person with Down syndrome really have? Check out http://www.notspecialneeds.com to discover a new perspective.


Facebook: https://www.facebook.com/coordown/
Twitter: https://twitter.com/coordown
Instagram: https://www.instagram.com/coordown/



*This video is being distributed freely to help disseminate information, and educate people about down syndrome. SAU1 does not own this video, and all credit is given to the original author. Because this information is being distributed freely for educational purposes this would fall under fair use. You can view source citations and fair use definition HERE.

PAautism and ASERT – Autism Needs Assessment Survey Coming Soon!


The Bureau of Autism Services is partnering with the Autism Services, Education, Resources and Training Collaborative (ASERT) to learn more about the needs of individuals with autism across Pennsylvania. To support this effort, ASERT will soon be conducting an Autism Needs Assessment survey.

*Above statement corrected 4/26/17

How can you help?

  • Encourage parents of children with autism and individuals over the age of 18 to complete the PA Autism Needs Assessment at www.paautism.org/needsassessment or complete the paper copy mailed to them.

Do you work with a family or individuals over 18 would who prefer a paper copy of the PA Autism Needs Assessment?

  • You can call ASERT to request a paper copy for them, or give them the ASERT phone number (1-877-231-4244) or Email (info@paautism.org).

Who gets the Autism Needs Assessment?

  • Parents of a child with autism or an individual with autism over 18 can complete the survey.
    Anyone, regardless of if they have received a letter, can complete the survey on the website.

Where can I find more information?

  • Frequently asked questions (FAQ) are on the PAautism website, www.PAautism.org/needsassessment
  • Call the ASERT Resource Center at 1-877-231-4244
  • Email info@paautism.org.


PA autism ASERT

Completing the PA Autism Needs Assessment in no way impacts program enrollment or services.

ASERT can also connect you with helpful resources and tools, as well as news on training opportunities and events in your community. Please visit www.paautism.org to learn more about ASERT, sign up for our newsletter, and create an account to start pinning resources. To learn more about autism in your county visit the PA Autism Census Page.


Additional Information

In preparation for the release of the survey, we are requesting that you review the attached PDF, which explains important details about the upcoming survey, including different options individuals and families will have to complete the survey. We ask that you help to share this information, and encourage individuals with autism and their parents/caregivers to complete the needs assessment. To stay up to date with the PA Autism Needs Assessment please visit: www.paautism.org/needsassessment.

Click HERE To View or Download The Original Document


If you have questions on the Needs Assessment, you can call the ASERT Resource Center at 1-877-231-4244 or email info@paautism.org.

Mailing Address:

Department of Human Services | ODP | Bureau of Autism Services

625 Forster St Room 605| Hbg PA 17105
Phone: 866.539.7689 | Fax: 717.265.7761


Supporting Pennsylvanians with developmental disabilities to achieve greater independence, choice and opportunity in their lives.


Milestone HCQU West’s iPad Lending Program

Provides iPads on loan to evaluate as assistive technology.

Touch-screen technologies like the iPad have revolutionized the lives of many people with disabilities. Apps designed to aid with communication, daily living, and motor skills have unlocked a world of both inclusion and independence that some have never before experienced.

Do you support a person who you think might benefit from an iPad, but would like to try it first? Maybe we can help!
  • This FREE service is available to individuals with intellectual and
    developmental disabilities who reside in Armstrong, Beaver, Butler,
    Clarion, Crawford, Indiana, Lawrence, Mercer, and Venango counties
  • All iPads have a loan period of 30 days
If you are interested in learning more about this service, please
contact us at 724-283-0990 or HCQUinfo@MilestonePA.org



PROLOQUO2GO is designed to ensure growth of communication skills and to promote language development. It covers all users, from beginning to advanced users, while catering for a wide range of fine – motor, visual and cognitive skills.
SPEAKIT! TEXT TO SPEECH translates typed words (emails, Word documents, messages typed directly into the app, and more) into an audio voice.
TOUCHCHAT HD is a full – featured communication solution for individuals who have difficulty using their natural voice.
ICOMMUNICATE lets you design visual schedules, storyboards, communication boards, routines,
flash cards, choice boards, speech cards, and more. It is customizable to your needs.
MYTALKTOOLS MOBILE is a next generation AAC app that helps people with communication difficulties say what they want with sequences of words, sounds and images. You choose the content (simple grids or boards with bold images) and play recorded sounds when you touch a cell. The sequences can even form complete sentences.
EVERYDAY SKILLS provides self-directed learning sessions for 40 important skills necessary for living independently and accessing the community based on proven content.
LIVING SAFELY provides self-directed learning sessions for important safety skills topics based on proven content. It provides an accessible learning tool that is specifically designed to be used directly by individuals with autism, learning or other developmental disabilities at their own pace.

Click Here to View or Download the Official Flyer from Milestone HCQU West

DRP Primary Election Hotline

DRP Primary Election Day Hotline
May 16, 2017

Persons with disabilities who need information or encounter problems at their polling place can contact the Disability Rights Pennsylvania (DRP) hotline on Primary Election Day.

The DRP Primary Election Day hotline number
or email DRP at electionday@disabilityrightspa.org.

If you CANNOT reach DRP on Election Day, call the Election Protection Hotline at 1-866-687-8683.

After Election Day, contact Disability Rights Pennsylvania at:
1-800-692-7443 (voice)
1-877-375-7139 (TDD)
1-717-236-0192 (fax)

The Department of State also has a voter hotline. That number is 1-877-868-3772.

Official Flyer can be downloaded HERE.

Welcome to SAU1.org


Welcome to the official website of Self Advocates United as 1 (SAU1). We are very happy that you found our website! This website will tell you a little about our organization, as well as post advocacy events that we are involved in.


The SAU1 Mission

Our mission is to support the self advocacy of people with disabilities for positive impact in our communities and in people’s lives.

Our vision is a world where individuals with developmental disabilities and their families are united to share knowledge, empower others, and use their voices to transform their lives and communities.


The SAU1 Story

Are you a person with a disability, a family member, or someone interested in making sure people have full lives? Maybe you have a friend with a disability, or you work to support people with disabilities. Even if you are just curious about advocacy and the rights of people with disabilities, you are in the right place!

Self Advocates United as 1 is a group of people who envision a world where people with developmental disabilities and their families are united to share knowledge, empower others, and use their voices to transform their communities and people’s lives. Our Board of Directors and voting members are people with disabilities from all over the state of Pennsylvania.

What do SAU1’s members do? We help each other and any people with disabilities and their families across PA. We hold letter-writing, e-mail, and phone workshops to help others learn how to advocate for change. We speak to anyone who will listen about people’s right to live the life they want and fight so everyone has that right. SAU1 teaches people at many levels about full inclusion and rights for all people.

SAU1 Advocacy is funded by a grant from the Pennsylvania Developmental Disabilities Council.


SAU1 Involved Events

We will Post on this website every time we are involved in an event. Events that SAU1 are involved in can be fount on our Events Page.


How To Contact SAU1

If you would like to contact SAU1 for more information, or if you would like to know how you can get involved, there are several methods you can use to contact us.

The best ways to contact us at Self Advocates United as 1 (SAU1), is by using one of the following methods.

  1. Email: info@sau1.org
  2. Call: 1 (877) 304-7730
  3. Message us on FaceBook
  4. Fill out a contact form HERE