Proposed Community Living Waiver Webinar

Proposed Community Living Waiver Webinar Now
Available on MyODP

AUDIENCE: All Interested Parties

PURPOSE: To announce an overview of the Office of Development Programs (ODP) Proposed
Community Living Waiver is now posted and available on MyODP. The link to the site is: Both the power point and recording of
the webinar can be found there.

The Community Living Waiver is anticipated to be effective on January 1, 2018, for a three year period with a renewal date of January 1, 2021.
The proposed Community Living Waiver has been developed in accordance with the Fiscal Year 2017-2018 budget, which provided funding for the development and implementation of a new intermediate waiver that will provide services to approximately 1,000 individuals with an intellectual disability or autism, as well as children under age 9 with a developmental disability who have a high probability of resulting in an intellectual disability or autism.

The proposed Community Living Waiver will join ODP’s Consolidated, Person/Family Directed Support and Adult Autism Waivers as an additional option to support individuals to live more independently in their homes and communities through the provision of a variety of services that promote community living, employment, communication, self-direction, choice and control. The Community Living Waiver closely resembles the current Person/Family Directed Support Waiver, with these notable differences:

  • There is a total limit of $70,000 per person per fiscal year for Community Living Waiver services. All waiver services are included in the limit, with an exception for Supports Coordination services.
  • Life Sharing services will be available at needs group levels 1 and 2 and for individuals who need less than 30 hours per week of service on average.
  • Supported Living services will be available at needs group levels 1 and 2.
  • Vehicle accessibility adaptations will be limited to $20,000 during a 10-year period.

Information regarding the proposed Community Living Waiver, including how to provide comments, can be found in the Pennsylvania Bulletin, Volume 47, Number 34 published on Saturday, August 26, 2017 at: The proposed Community Living Waiver application documents that should be used as the basis for comments are available at:

Interested persons are invited to submit written comments regarding the proposed Community Living Waiver. Comments should be addressed to Julie Mochon, Department of Human Services, Office of Developmental Programs, 625 Forster Street, Room 501, Harrisburg, PA 17120.


*Posted via ODP (Office of Developmental Programs) Communication.

United States Senate Bill Threatens Health Care


The Senate is trying again to pass “health care reform” that will mean millions will lose their health insurance.  This new version of “health care reform” is no better, and in some ways worse, than the reform that the Senate already defeated.

In the next couple of weeks the Senate could try to pass this new version of “health care reform” introduced by Senators Graham and Cassidy. Do not be fooled! This new legislation will mean millions, including many people with disabilities, will lose health insurance.

Your Senators need to hear from you! Please take a moment to send the following letter to your Senators. Let them know about the importance of voting no on the Graham, Cassidy health care reform bill that may be voted on in the next couple of weeks.  Click here to Tell Your Senators To Vote No On Graham, Cassidy Health Reform Bill.  

Thank you.


*Posted via DRP (Disability Rights Pennsylvania) Communication

ACA Repeal is Back – And So Are We

The Senate is at it again, trying to rush through disastrous legislation to take our health care away. The Graham-Cassidy bill introduced this week will have the same devastating effects as the repeal bills we’ve been beating back all year. It will slash Medicaid funding, leave millions without health insurance, and allow insurance companies to deny you coverage if you have a disability.

We stopped them from taking away our health care before, and we can stop them now. You know the drill: call both of your Senators, then email them. You can find phone numbers for your Senators’ offices at, and use Access Living’s email tool to send them emails. You can make your own scripts when you call and email, or use ours:

My name is [your name], and I live in [your town]. I’m [calling/writing] to ask Senator [Name] to vote NO on the Graham-Cassidy bill, or any other bills that would repeal the Affordable Care Act, cut Medicaid funding and leave millions of people with no health insurance. The people of [your state] are still watching, and our health care is just as important to us now as it was in July. We’re counting on you to do the right thing and save our health care. Please vote NO on Graham-Cassidy.

If you find it easier to leave an answering machine message than to talk to a staffer on the phone, this weekend is a great time to call. If you don’t speak, you can call using your AAC device, or get a friend to call in and read your message. No matter how you speak out, your voice matters right now. A flood of calls and emails will remind the Senate of what they learned earlier this year – Nothing About Us, Without Us!


*Posted via ASAN (Autistic Self Advocacy Network) Communication

Roland Johnson “Who’s in control?”

Who’s in Control? Keynote speech given by Roland Johnson. He was the president of Speaking for ourselves. This speech was given at the third international People First Conference June 14, 1993.
Roland Johnson 1945-1994 Founding member and leader of Speaking for Ourselves, Pennsylvania


*This video is being distributed freely to help disseminate information, and educate people about Self-Advocacy. SAU1 does not own this video, and all credit is given to the original author. Because this information is being distributed freely for educational purposes this would fall under fair use. You can view source citations and fair use definition HERE.

Take Action to Support Disability Protections

Dear Supporter,

Ok, I’m going to get wonky on you. But I know that as a disability rights advocate you understand that the lives of people with disabilities can sometimes be dramatically impacted by even the smallest actions taken in any government agency.

And that is exactly what is about to happen.

President Trump’s billionaire Secretary of Education, Betsy DeVos, wants to decimate the regulations that ensure students with disabilities have access to the same opportunities to get an education and find employment as every other kid.

Right now officials at the Department of Education (ED) are looking for ways to weaken 154 regulations, including:

·  Regulations affecting the Individuals with Disabilities Education Act (IDEA) that address the misidentification, over-representation and under-representation of students in special education on the basis of race, ethnicity, and gender.

·  Competitive Integrated Employment in the Workforce Innovation and Opportunity Act (WIOA) which helps people with disabilities find jobs in the community that pay decent wages so they can support themselves.

·  The Every Student Succeeds Act (ESSA) which has critical protections for students with disabilities and guarantees equal opportunities in the classroom.

·  Pre-Employment Transition Services in WIOA that help recent graduates with disabilities prepare for jobs and get work experience.

We need you to send comments to the Department of Education by September 20th telling them not to mess with any regulations or guidance that ensure these laws work as intended.

Click here to send your comments.

Many of the regulations ED is looking to weaken or repeal went through an extensive review and approval process. An exhaustive assessment of their impact was conducted and input from experts and citizens from all over the country was collected. It makes no sense to re-visit these regulations now and sets a terrible precedent.

To make it easy for you, we have written a number of comments you can cut and paste into the Department of Education’s web form. Take a look…

Comment 1:
Federal regulations and non-regulatory guidance help states and school districts fully implement the laws, such as the IDEA, ESSA, and WIOA, which are critical to ensuring students with disabilities have the same opportunities as every other kid. Stakeholders rely on these authorities to assist them in understanding and complying with the statutes. As such, none should be modified or rescinded by the Administration.

Comment 2:
As a citizen I firmly stand behind the laws listed below and their federal implementing regulations and non-regulatory guidance, which are essential to ensuring states and school districts fulfill their obligations to students with disabilities and their families. I urge you not to modify or rescind any.

·  Civil Rights Act of 1964

·  Every Student Succeeds Act (ESSA)

·  Section 504 of the Rehabilitation Act of 1973

·  Individuals with Disabilities Education Act (IDEA)

·  Higher Education Act;

·  Americans with Disabilities Act (ADA); and

·  Workforce Innovation and Opportunity Act (WIOA) amending Title I of the Rehabilitation Act of 1973.

Comment 3:
For nearly 50 years, the civil rights of students, including those with disabilities – from infancy into adulthood – have been the focus of key federal laws passed by the U.S. Congress. These laws, upheld by the courts, regularly reauthorized, and consistently aligned to create unified federal policy, provide the strong basis to promote and uphold equity and access to a public education for America’s children, including students with disabilities. I write to urge you not to repeal, replace or modify any of the regulations or guidance that ensure they are implemented appropriately.

I told you I was about to get wonky, didn’t I? But this is important and I know I can count on you.

Please cut and paste any of the comments above or write your own and submit them to Betsy DeVos at the Department of Education here. All comments are due by September 20th, 2017.

It’s critical that your government hear from you about these important issues. It’s the only way they learn what Americans are thinking. Believe me, this Administration hears from high paid lobbyists and billionaire donors all the time. But who they really need to hear from is you.

Thank you for all you do in the fight for the rights of people with disabilities.


*Posted Via DRP (Disability Rights Pennsylvania) Communication.

Call your representatives! 📞 Protect the ADA!

An attack on the Americans with Disabilities Act (ADA) is an attack on disability rights – and that’s exactly what’s happening in Congress right now. Last week, the House Judiciary Committee voted in favor of H.R. 620, the ADA Education and Reform Act of 2017. Don’t let the name fool you; this bill puts new restrictions on the ADA and the rights of people with disabilities. We need to push back now: contact your Representatives and let them know that our civil rights don’t come with a waiting period.

Under H.R. 620, before we can exercise our ADA rights, a new bureaucratic process would have to take place every time a business is inaccessible.

  • First, you would have to send a formal letter to the business describing the problem.
  • If your letter doesn’t include all the technical legal language the law requires, it won’t count, and the business can ignore it.
  • After receiving your letter, the business can put off fixing the illegal barriers that exclude disabled people for up to four months before you can sue for your rights.

Businesses have had 27 years to come into compliance with the ADA. Some of them still want a pass on excluding disabled people – but we don’t have to give them one. Contact your Representative and tell them to vote NO on delaying our rights.

You can find contact information for your Congressional Representative at Here’s a script you can use to call, write, or email:

My name is [Name], and I live in [your town]. I’m [calling/writing] to ask Representative [Name] to vote NO on H.R. 620. People with disabilities need to be able to shop for groceries, stay at hotels, and use other public accommodations. It has been 27 years since the Americans with Disabilities Act. Disabled people in our district have waited too long for access – and businesses have had plenty of time to provide it. Please protect the ADA and vote NO on H.R. 620.

After you’ve called or emailed, check out our civic engagement toolkit for more ways to engage with your elected officials. When Congress is debating disability policy, they need to be listening to disabled people – so speak up, and be a voice they can’t ignore. Make sure your Representative gets the message: Nothing about us, without us!


*This Article is posted via ASAN (Autistic Self Advocacy Network) Communication.

Come Celebrate with SAU1 – You’re Invited!

Self Advocates United as 1 has been
supporting self advocacy of people with disabilities
for positive impact in our communities and in people’s lives
since 2007. Time for our 10 Year Celebration Luncheon!

Self Advocates United as 1 logo. Image of 3 people coming together over the state of PASAVE the DATE!
Tuesday September 26, 2017
1:30 – 4 pm
National Civil War Museum
Harrisburg, PA

You’re Invited to come celebrate with SAU1 and Self Advocates!

RSVP to save your Seats at the Celebration

We are now accepting RSVPs for the celebration!

How do I RSVP to Celebrate SAU1?
There are two ways to RSVP for this event. You can RSVP online, or by mail.

Option 1:
If you are on our physical mailing list, you will receive an RSVP card to fill out and mail back with your check or money order.

Option 2:
We have also set up an online RSVP system* for anyone to use as a convenience option.
When you RSVP online you can choose to pay for your seats, and any donations, either online**, or by mail. but it will help us keep better track of the number of seats left as we take RSVPs.

*Your personal information, such as your name and mailing address, that you enter when you RSVP online is only visible by SAU1 Administrators. Your information will not be shared, given, or sold to anyone. You’re information is also stored in an encrypted format for security purposes.

**All online payments will be processed through PayPal’s Secure Payment gateway. We do not receive, and can not view or store any sensitive payment information.

Event Pricing:

  1. Single Ticket – $25
  2. Guest Ticket – $25 per Ticket
  3. Table of 8 – $185 ($15 Savings)
  4. Donation to fund a Self Advocate in need to attend* – $25
*Donations of $25 to fund a Self Advocate to attend will be used to give a Self Advocate, who is not able to otherwise attend the event, a ticket to  come and celebrate with us. This is considered a donation, and may be tax-deductible.

If you are a Self Advocate and do not have money for a ticket, Call our message line at 1 877 304 7730. Say your name and phone number two times, very slowly. SAU1 staff will call you back to let you know if we have scholarship money for you.

We couldn’t have done it without you!

Share your story of how SAU1 made an impact in YOUR life.
Email with your story or for more information.

Our mission is to support the self advocacy of people with disabilities for positive impact in our communities and in peoples lives.

Our vision is a world where individuals with developmental disabilities and their families are united to share knowledge, empower others, and use their voices to transform their lives and communities.

Click HERE to RSVP Online!

Work Incentive Planning and Assistance (WIPA) Program Advisory Meeting

Posted via Disability Rights Pennsylvania(DRP)

Work Incentive Planning and Assistance (WIPA) Program Advisory Meeting

If you receive SSI/SSDI or support individuals who receive SSI/SSDI in employment, then we want to hear from you.

Come and learn about WIPA services and what other community employment resources are available.  Let’s talk about how we can work together to help people receiving Social Security benefits reach their employment goals.

Come out and join us in helping people with disabilities fulfill their work goals.  When all people work, everyone benefits!

When:  Thursday, September 14, 2017, 12pm-3pm

Where:  Montgomery County Workforce Development Board, 1430 DeKalb Street Norristown, PA  19401 – Room:  TBD

Speaker:  TBD

RSVP by calling or texting 215-980-7730 or e-mail  If you need any environmental or language accommodations, let us know by September 7, 2017.   Free parking available.  See you then!

PCAA Upcoming Events and Information

Posted via PCAA Newsletter
PCAA is the Pittsburgh Center for Autistic Advocacy

PCAA Upcoming Events

Learn legislative self-advocacy!

Sunday, August 13
2 PM – 6 PM
Rodef Shalom Congregation (map)

We’re joining the Autism Connection of PA and the Multicultural Disability Leadership Center to present a training on legislative advocacy.

Learn the process, step-by-step, for meeting with your political representatives. Ever wondered how to schedule a meeting or what to say? This training, run by autistic self-advocates and engaged parents, will cover everything you need to know, including opportunities to practice with a panel of legislators and staffers.

Registration encouraged but not required. Reserve your spot here.

August Social Meetup

Sunday, August 27
4 PM – 7 PM
Mellon Park Rose Garden (map)

Come hang out with your local Autistic community! Each month, we host a sensory-friendly social meetup, where we hang out, play games, do puzzles, color, and enjoy ourselves as a community. These events are very laid back. Please do not worry about arriving late or leaving early!

These events seek to be as sensory friendly as possible. Please refrain from wearing strong scents or using noise devices without headphones.

Where is Hope?

Wednesdays, September 6 and 13
6 PM – 8 PM
CLP East Liberty (map)

Join PCAA and Black and disabled community builder, Dustin Gibson, for a screening of the film Where Is Hope?, which explores police violence against people with disabilities, and a panel of local speakers on this phenomena on September 6. The following week, Cori and Dustin will present a workshop on the intersection of ableism and racism, how these phenomena affect us all, and next steps.



Public Policy Report

ACTION STEP: Disability Integration Act

The Disability Integration Act has been introduced in both the US House and Senate. Senator Bob Casey is already a co-sponsor, as are Representatives Robert Brady [PA-1] and Dwight Evans [PA-2].  Key targets for co-sponsorship are Representatives: Brendan Boyle [PA-13], Mike Doyle [PA-14], and Matthew Cartwright [PA-17]. Contact your representative and ask them to co-sponsor this legislation.

Paul’s Law (PA Senate Bill 108)

Paul’s Law passed the Senate, and has been referred to the House Judiciary Committee, where it will likely stay until after the Pennsylvania budget is finalized. Expect future updates after the budget has been resolved.

PA Medicaid (PA House Bill 59)

“Legislation passed by the state Senate late last month could re-shape the commonwealth’s Medicaid program — potentially making benefit changes and requiring work from the program’s able-bodied recipients.”

– For the rest, see link.

National Healthcare Legislation

While the latest GOP attempt at repealing and replacing the Affordable Care Act failed, healthcare access is still at risk. President Trump has taken several steps to make the healthcare market more unstable, including threatening to withhold payment to insurers, releasing anti-ACA videos, decreasing the window for enrollment, and considering not enforcing the clause requiring everyone to purchase insurance. The House and Senate appear to have moved on from healthcare….for now. This doesn’t mean they won’t revisit changes in the future.



Studies and CFPs

Diversity of social strengths and challenges in autism spectrum disorder
Women often struggle to get diagnosed and get support, because clinicians and others have a male-biased view of what autism should “look like”. In clinical language, autism involves “restricted, repetitive patterns of behavior, interests or activities” (RRB), at least in childhood. RRBs are known to look different in women compared to men, but little is known about how. This questionnaire aims to ask about women’s own experiences, to understand female autism better, increase acceptance and help women get support.
Study Link
Contact: Kajsa Igelstrom, at
Study on the Experiences of Young Adults with Autism
Are you a young adult age 21 through 35 who has a diagosis of Autism Spectrum Disorder or the parent of a young person with ASD in this age range? Are you available for an interview lasting 1 to 1.5 hours?This study seeks to document the experiences of young adults with autism and their families in order to inform human service providers, postsecondary education and training institutions, policymakers, and other interested in helping young adults with autism and their families.
Contact Jake Dembosky at (412)-719-3653 or

Participants receive a $20 giftcard to Amazon or Target for their time.

Social Brain Interaction Study
Researchers at the University of Pittsburgh are looking for adults diagnosed with an Autism Spectrum Disorder to participate in a research study investigating the brain during social interaction. Participants will wear a safe and painless device measuring brain activity using infrared light while interacting with another person and wear a small device that records their daily conversations in their homes.
To see if you qualify: Call 412-383-5280
Text 412-463-1253 /
Autism and Gender Variance Study
Researchers at UMass Boston want to learn more about your experience of identifying as gender diverse (transgender or gender nonconforming) and as being on the Asperger’s/Autism spectrum. This study might be a good fit for you: • If you are willing to talk about your experiences with these two identities • You are 18 years of age and older • Identify (broadly) as being gender diverse (transgender or gender nonconforming) and on the Asperger’s/Autism spectrum. • You are living in the U.S.
To take part in this study, please contact Meredith Maroney at
ASERT Social Skills Course
ASERT is offering a free 16-week social skills course for 18-35 year old Autistic adults. Each week involves a 75 minute instructive session providing a window into neurotypical social expectations and a 90 minute practice session with neurotypical volunteers. This social skills group is offered as part of a study funded by an Autism Services, Education, Resources, and Training Collaborative Grant from the Pennsylvania Bureau of Autism Services, Department of Public Welfare. To participate, you’ll meet with the researchers to confirm your eligibility for the program, participate in a pre-test, and a follow-up a few months after the course.
For more information, contact Ryan Schaitkin (412-339-0956 or – Subject line: Young Adult Participant.) Study director: Jamie Kulzer, PhD, Department of Rehabilitation Science and Technology, University of Pittsburgh
Mindfulness and Autism Study
Are you an adult diagnosed with Autism Spectrum Disorder? Do you feel stressed, anxious, or dissatisfied with your life?University of Pittsburgh researchers are conducting a 10-week Mindfulness-Based Stress Reduction research study for adults with Autism Spectrum Disorder.

This research study will involve:
• Guided mindfulness meditation practices
• Gentle stretching and mindful yoga
• Group discussions

Participants will be asked to attend 8 weekly 2.5 hour classes, a 7.5 hour practice retreat, and complete daily homework assignments. Participants will be paid up to $140.


Transportation Study
We are looking for people who are 18 years and older with developmental disabilities to complete a survey asking questions about transportation. We are trying to learn about what transportation people with developmental disabilities use to get to activities in the community. We are also trying to learn about people’s experiences using public transportation (i.e., buses and trains) and what makes it hard or stops a person from using public transportation. We want to know how transportation impacts participation in life activities such as work, doctor’s appointments, shopping, social events, and any other activities important to the person. The findings of this survey will be used to identify transportation issues and help in the development of future transportation training programs.
 If you or someone you know is interested in participating in the study, please click on the following link:
Transportation Survey
Please feel free to contact Dr. Beth Pfeiffer at or (215) 707-4504 with any questions or if would like additional information about the study.


SAU1 is Celebrating 10 Years of Self Advocacy #Celebrate10

Self Advocates United as 1 has been
supporting self advocacy of people with disabilities
for positive impact in our communities and in people’s lives
since 2007. Time for our 10 Year Celebration Luncheon!


Self Advocates United as 1 logo. Image of 3 people coming together over the state of PASAVE the DATE

Tuesday September 26, 2017
1:30 – 4 pm
National Civil War Museum
Harrisburg, PA

Watch your email, our website, our facebook,

and mail if you are on our postal mailing list, for your invitation.

We couldn’t have done it without you!

Share your story of how SAU1 made an impact in YOUR life.
Email with your story or for more information.

Click Here to Download the Flyer