Community HealthChoices (CHC) Waiver Transitions – DRP

Community HealthChoices (CHC) is a managed care program that will better coordinate the way participants receive their physical health services and long-term services and supports (LTSS) so that Pennsylvania can serve more people in their homes and their communities. CHC will serve Medicaid participants 21 years of age or older who also receive Medicare, need LTSS in their home or community, or are in nursing facilities. Today, there are five waivers in which participants receive LTSS. In the future there will be two ways.


CHC: will serve participants currently in the Aging, Attendant Care, Independence, and COMMCARE waivers. OBRA participants who are nursing facility clinically eligible will also move to CHC.

OBRA Waiver: will continue to serve participants 18 years of age and older who have a severe developmental disability requiring the level of care provided in an intermediate care facility/other related conditions (often referred to as ICF/ORC).

As CHC is phased in, there will be several steps taken to assure the individuals continue to receive services. The attached document shows the timeline of when these steps will occur.



What will happen?

·         Since CHC only serves participants 21 years of age and older, participants in the Attendant Care and Independence waivers who are between 18 to 20 years of age will be enrolled in the OBRA Waiver to receive LTSS services.

·         The OBRA Waiver will provide the same services available in Attendant Care and Independence waivers.  

·         It is DHS’ priority to ensure that participants’ services are not impacted in any way.


When will this happen?   

Southwest Zone: August 2017 to October 2017

Southeast Zone:  February 2018 to May 2018

Remaining Zones:  August 2018 to October 2018



What will happen?

·         The COMMCARE Waiver will end December 31, 2017. Any new applicants who would have been eligible for the COMMCARE Waiver after September 1, 2017, will be eligible for and enrolled in the Independence Waiver.

·         This means that participants who are receiving services in the COMMCARE Waiver who do not live in the Southwest Zone will be enrolled in the Independence Waiver before December 31, 2017. 

·         It is DHS’ priority to ensure that participants’ services are not impacted in any way.


When will this happen?   

COMMCARE Waiver participants residing outside of the Southwest Zone will be enrolled in the Independence Waiver by their service coordinators between July 2017 and November 2017.   

COMMCARE participants in the Southwest Zone will transition to CHC on January 1, 2018.



What will happen?

·         OBRA Waiver participants whose level of care determination was completed before November 18, 2016, will get an assessment to determine their eligibility for CHC. Those determined ineligible for CHC will remain in OBRA.

·         DHS is working with the Area Agencies on Aging, service coordinators, and providers to ensure assessments are completed in a timely manner. Participants will be contacted by their Area Agency on Aging to schedule a time for the assessor to meet with them to go through the assessment process. 


When will this happen?      

Southwest Zone: May 2017 to August 2017

Southeast Zone: October 2017 to February 2018

Remaining Zones: April 2018 to August 2018


*There are no additional transitions for Aging Waiver participants. Aging Waiver participants will simply transition to CHC when CHC begins in their zones.

ASAN – #ProtectOurCare

Over the past few weeks, we’ve been asking you to get involved in our fight to defend health care. Your advocacy has been amazing – you’ve called your Members of Congress, attended town halls, and taken to social media to stand up for your right to access health care. Now, we’re pleased to announce the release of a few new tools to help you contact your Members of Congress by mail.

Visit our new Postcard Center for templates and talking points that you can use to ask your Members of Congress to #ProtectOurCare. If you need more information about how to format or address your letter or postcard, check out our factsheet on writing to elected officials. Once you’ve written your message, you can make your voice go farther by spreading the word on social media – snap a picture with your postcard or letter and share it using the hashtag #ProtectOurCare.

Remember, your Members of Congress work for you. You can make a difference by letting them know how health care policy impacts your life, and reminding them that you are watching what they do next. Make sure Congress gets the message – Nothing About Us Without Us!

WIPA Program Advisory Meeting Announcement

Work Incentive Planning and Assistance (WIPA)
Program Advisory Meeting Announcement

If you receive SSI/SSDI or support individuals who receive SSI/SSDI in employment, then we want to hear from you.

Come and learn about WIPA services and other community employment resources that are available. Let’s talk about how we can work together to help people receiving Social Security benefits reach their employment goals.

Come out and join us in helping people with disabilities fulfill their work goals. When all people work, everyone benefits!

WHEN: Thursday, June 8, 2017 12-3pm

WHERE: Northampton County Human Services, 2801 Emrick Blvd, Bethlehem, PA 18020

PLEASE RSVP by calling or texting (215) 980-7730 or e-mail us at by June 1, 2017. If you need any environmental or language accommodations, let us know by May 25, 2017

Envisioning the Future: Allies in Self-Advocacy

The Future of Self-Advocacy

The Administration on Intellectual and Developmental Disabilities (AIDD) is the federal agency that supports the developmental disabilities network. The network includes Developmental Disabilities Councils (DD Councils), University Centers for Excellence in Developmental Disabilities (UCEDDs), and Protection and Advocacy systems (P&As). AIDD held nine regional summits in 2011 and 2012.

The goals of the summits were to:

  1. Find out what is happening in the states on self-advocacy
  2. Make state team plans to strengthen self-advocacy
  3. Make national recommendations to strengthen self-advocacy

This is a great piece from aucdnetwork outlining the goals and path of the self-advocacy civil rights movement. This video is being featured because SAU1 attended the Columbus summit and one of our board members Carolyn Morgan is featured in this video.


*This video is being distributed freely to help disseminate information, and educate people about Self-Advocacy. SAU1 does not own this video, and all credit is given to the original author. Because this information is being distributed freely for educational purposes this would fall under fair use. You can view source citations and fair use definition HERE.

A Self-Advocate’s Guide to Medicaid

About Medicaid

Medicaid is the biggest health care program in the country. It’s an important part of the United States health care system. But a lot of the information out there about Medicaid and attempts to change it can be difficult to understand and navigate. That’s why ASAN is proud to announce the release of their plain language resource “A Self-Advocate’s Guide to Medicaid.” This resource was developed in collaboration with the Autism Services, Education, Resources and Training Collaborative (ASERT), and with funding from the Special Hope Foundation.


The Self-Advocate’s Resources

This resource is the third of several that ASAN is developing to equip self-advocates to participate in important conversations about our lives and the services we rely on. The Medicaid toolkit is available in two versions:


  • The Easy Read Edition. The Easy Read version is divided into six parts, each containing one subject discussed in the toolkit: Medicaid introduction and background, Who Can Get Medicaid?, What Does Medicaid Pay For?, Medicaid funding, What Could Happen to Medicaid?, and a summary and glossary explaining the terms we use in the toolkit. The Easy Read version uses pictures along with text, and has more white space.


  • A Plain-Text Version for either those with vision-related disabilities or those who would prefer a version without accompanying graphics. The Plain Text Version is available as one document, or in individual parts.


Self-Advocate’s Medicaid Resources

Easy Read Resources

Just click the link of what you are interested in below to view or download the Easy Read resource.

  1. Medicaid Introduction and Background
  2. Who Can Get Medicaid
  3. What Does Medicaid Pay For
  4. Medicaid Funding
  5. What Could Happen to Medicaid
  6. Summary and Glossary


Plain Text Resources

Just click the link of what you are interested in below to view or download the Plain Text resource.

Complete Medicaid Toolkit

  1. Medicaid Introduction and Background
  2. Who Can Get Medicaid
  3. What Does Medicaid Pay For
  4. Medicaid Funding
  5. What Could Happen to Medicaid
  6. Summary and Glossary


*Resources Courtesy of ASAN with collaboration of ASERT.

SAU1 Voting Teleconference Summary

Voting Rights

Everyone has the fundamental right to vote, and everyone has the right to get needed assistance.


Voting ID Requirements

A big voting issue recently is Voter ID Laws in Texas. On April 10, 2017, SB 14 (SB 14 is the law enacted by Texas Legislators) the District Court has once again ruled that the SB 14 law is intended to discriminate against minority voters in Texas. This ruling for SB 14 has set precedent for other states with the case law “Texas NAACP v. Steen” (consolidated with “Veasey v. Abbott”). For more information about this law CLICK HERE.

That being said, there are only 2 times when trying to vote that it is mandatory to show ID. You need to show ID when you go to vote for the first time, and you need to show ID if you go to a polling place that you have never been to before. If you have already voted in the past, and you have voted at the polling place before you do NOT have to show ID.

If you feel like you are being forced to show ID at a polling place in an illegal manner, Please call the hotline number listed below.


Polling Place Accessibility

Last week in Washington County, 39 surveys were completed for inaccessible polling places. Those surveys were sent to the state for review. If you visit a polling place and it is inaccessible for any reason please let us know. A polling place would be considered inaccessible if there is no wheel chair ramp, if it doesn’t have at least one accessible voting machine or computer, or if there is no one there to accommodate the needs of somebody with a disability.

If your polling place is inaccessible, or if one of your friends tell you their polling place is inaccessible, please call the hotline number below and report the polling place. This will help your communities by trying to get those places accessible for everyone’s needs.


Disability Rights Pennsylvania Hotline

Disability Rights Pennsylvania Hotline 1-800-692-7443

PAautism and ASERT – Autism Needs Assessment Survey Coming Soon!


The Bureau of Autism Services is partnering with the Autism Services, Education, Resources and Training Collaborative (ASERT) to learn more about the needs of individuals with autism across Pennsylvania. To support this effort, ASERT will soon be conducting an Autism Needs Assessment survey.

*Above statement corrected 4/26/17

How can you help?

  • Encourage parents of children with autism and individuals over the age of 18 to complete the PA Autism Needs Assessment at or complete the paper copy mailed to them.

Do you work with a family or individuals over 18 would who prefer a paper copy of the PA Autism Needs Assessment?

  • You can call ASERT to request a paper copy for them, or give them the ASERT phone number (1-877-231-4244) or Email (

Who gets the Autism Needs Assessment?

  • Parents of a child with autism or an individual with autism over 18 can complete the survey.
    Anyone, regardless of if they have received a letter, can complete the survey on the website.

Where can I find more information?

  • Frequently asked questions (FAQ) are on the PAautism website,
  • Call the ASERT Resource Center at 1-877-231-4244
  • Email


PA autism ASERT

Completing the PA Autism Needs Assessment in no way impacts program enrollment or services.

ASERT can also connect you with helpful resources and tools, as well as news on training opportunities and events in your community. Please visit to learn more about ASERT, sign up for our newsletter, and create an account to start pinning resources. To learn more about autism in your county visit the PA Autism Census Page.


Additional Information

In preparation for the release of the survey, we are requesting that you review the attached PDF, which explains important details about the upcoming survey, including different options individuals and families will have to complete the survey. We ask that you help to share this information, and encourage individuals with autism and their parents/caregivers to complete the needs assessment. To stay up to date with the PA Autism Needs Assessment please visit:

Click HERE To View or Download The Original Document


If you have questions on the Needs Assessment, you can call the ASERT Resource Center at 1-877-231-4244 or email

Mailing Address:

Department of Human Services | ODP | Bureau of Autism Services

625 Forster St Room 605| Hbg PA 17105
Phone: 866.539.7689 | Fax: 717.265.7761  


Supporting Pennsylvanians with developmental disabilities to achieve greater independence, choice and opportunity in their lives.


Milestone HCQU West’s iPad Lending Program

Provides iPads on loan to evaluate as assistive technology.

Touch-screen technologies like the iPad have revolutionized the lives of many people with disabilities. Apps designed to aid with communication, daily living, and motor skills have unlocked a world of both inclusion and independence that some have never before experienced.

Do you support a person who you think might benefit from an iPad, but would like to try it first? Maybe we can help!
  • This FREE service is available to individuals with intellectual and
    developmental disabilities who reside in Armstrong, Beaver, Butler,
    Clarion, Crawford, Indiana, Lawrence, Mercer, and Venango counties
  • All iPads have a loan period of 30 days
If you are interested in learning more about this service, please
contact us at 724-283-0990 or



PROLOQUO2GO is designed to ensure growth of communication skills and to promote language development. It covers all users, from beginning to advanced users, while catering for a wide range of fine – motor, visual and cognitive skills.
SPEAKIT! TEXT TO SPEECH translates typed words (emails, Word documents, messages typed directly into the app, and more) into an audio voice.
TOUCHCHAT HD is a full – featured communication solution for individuals who have difficulty using their natural voice.
ICOMMUNICATE lets you design visual schedules, storyboards, communication boards, routines,
flash cards, choice boards, speech cards, and more. It is customizable to your needs.
MYTALKTOOLS MOBILE is a next generation AAC app that helps people with communication difficulties say what they want with sequences of words, sounds and images. You choose the content (simple grids or boards with bold images) and play recorded sounds when you touch a cell. The sequences can even form complete sentences.
EVERYDAY SKILLS provides self-directed learning sessions for 40 important skills necessary for living independently and accessing the community based on proven content.
LIVING SAFELY provides self-directed learning sessions for important safety skills topics based on proven content. It provides an accessible learning tool that is specifically designed to be used directly by individuals with autism, learning or other developmental disabilities at their own pace.

Click Here to View or Download the Official Flyer from Milestone HCQU West

DRP Primary Election Hotline

DRP Primary Election Day Hotline
May 16, 2017

Persons with disabilities who need information or encounter problems at their polling place can contact the Disability Rights Pennsylvania (DRP) hotline on Primary Election Day.

The DRP Primary Election Day hotline number
or email DRP at

If you CANNOT reach DRP on Election Day, call the Election Protection Hotline at 1-866-687-8683.

After Election Day, contact Disability Rights Pennsylvania at:
1-800-692-7443 (voice)
1-877-375-7139 (TDD)
1-717-236-0192 (fax)

The Department of State also has a voter hotline. That number is 1-877-868-3772.

Official Flyer can be downloaded HERE.

Welcome to


Welcome to the official website of Self Advocates United as 1 (SAU1). We are very happy that you found our website! This website will tell you a little about our organization, as well as post advocacy events that we are involved in.


The SAU1 Mission

Our mission is to support the self advocacy of people with disabilities for positive impact in our communities and in people’s lives.

Our vision is a world where individuals with developmental disabilities and their families are united to share knowledge, empower others, and use their voices to transform their lives and communities.


The SAU1 Story

Are you a person with a disability, a family member, or someone interested in making sure people have full lives? Maybe you have a friend with a disability, or you work to support people with disabilities. Even if you are just curious about advocacy and the rights of people with disabilities, you are in the right place!

Self Advocates United as 1 is a group of people who envision a world where people with developmental disabilities and their families are united to share knowledge, empower others, and use their voices to transform their communities and people’s lives. Our Board of Directors and voting members are people with disabilities from all over the state of Pennsylvania.

What do SAU1’s members do? We help each other and any people with disabilities and their families across PA. We hold letter-writing, e-mail, and phone workshops to help others learn how to advocate for change. We speak to anyone who will listen about people’s right to live the life they want and fight so everyone has that right. SAU1 teaches people at many levels about full inclusion and rights for all people.

SAU1 Advocacy is funded by a grant from the Pennsylvania Developmental Disabilities Council.


SAU1 Involved Events

We will Post on this website every time we are involved in an event. Events that SAU1 are involved in can be fount on our Events Page.


How To Contact SAU1

If you would like to contact SAU1 for more information, or if you would like to know how you can get involved, there are several methods you can use to contact us.

The best ways to contact us at Self Advocates United as 1 (SAU1), is by using one of the following methods.

  1. Email:
  2. Call: 1 (877) 304-7730
  3. Message us on FaceBook
  4. Fill out a contact form HERE