Roland Johnson “Who’s in control?”

Who’s in Control? Keynote speech given by Roland Johnson. He was the president of Speaking for ourselves. This speech was given at the third international People First Conference June 14, 1993.
Roland Johnson 1945-1994 Founding member and leader of Speaking for Ourselves, Pennsylvania


*This video is being distributed freely to help disseminate information, and educate people about Self-Advocacy. SAU1 does not own this video, and all credit is given to the original author. Because this information is being distributed freely for educational purposes this would fall under fair use. You can view source citations and fair use definition HERE.

SAU1 is Celebrating 10 Years of Self Advocacy #Celebrate10

Self Advocates United as 1 has been
supporting self advocacy of people with disabilities
for positive impact in our communities and in people’s lives
since 2007. Time for our 10 Year Celebration Luncheon!


Self Advocates United as 1 logo. Image of 3 people coming together over the state of PASAVE the DATE

Tuesday September 26, 2017
1:30 – 4 pm
National Civil War Museum
Harrisburg, PA

Watch your email, our website, our facebook,

and mail if you are on our postal mailing list, for your invitation.

We couldn’t have done it without you!

Share your story of how SAU1 made an impact in YOUR life.
Email with your story or for more information.

Click Here to Download the Flyer

AAPD Announces the Summer Internship Program Class of 2017

WASHINGTON, DC – The American Association of People with Disabilities (AAPD) is pleased to announce the Summer Internship Program Class of 2017.

AAPD’s Summer Internship Program provides the opportunity for students with disabilities to gain hands-on professional experience to help advance their career goals. Through the Summer Internship Program, AAPD seeks to give a class of students with disabilities the skills, resources, and networks they need in order to not only become employed, but to be employed in meaningful and high-level positions. Our Summer Internship Program engages students and recent graduates with disabilities from all across the United States. Because we cover the costs of travel and housing, in addition to providing a living stipend, we are able to recruit a diverse class of interns that may not otherwise have the opportunity to participate in a program like ours. For many of these students, participating in AAPD’s Summer Internship Program is their first exposure to the broader disability community, which empowers them to be self-advocates and sets them on a path to employment.

In addition to placing each intern on Capitol Hill, in government agencies, national nonprofit organizations, or the private sector, AAPD also matches each intern with a mentor connected to the disability community. The program begins with a week of Orientation to help the interns get acclimated to living in the city as well as to establish a base understanding of the history of the disability rights movement and current policy issues impacting people with disabilities. The AAPD Summer Internship Program is unique and effective because we offer a comprehensive experience that goes beyond the normal 9-5 intern work-week. Outside of the internship hours, AAPD connects the interns to a variety of guest speakers, events, and professional development opportunities.


ContactZach Baldwin

Phone: 202-521-4310


The 2017 Internship Class includes:


Learn more about the 2017 Summer Interns here!

The 2017 AAPD Summer Internship Program would not be possible without the generous support of our sponsors. Thank you Mitsubishi Electric America Foundation, AT&T, the Arconic Foundation, Google, and the Aid Association for the Blind of the District of Columbia for supporting these students!


The American Association of People with Disabilities (AAPD) is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities. To learn more, visit the AAPD Web site:

Posted Via American Association of People with Disabilities (AAPD).

A Time to Learn Our History

In conjunction with National DISABILITY Pride Day,

Speaking For Ourselves

is proud to present

A Time to Learn Our History

…what was, who we are currently

& who we will be in the future!

at the National Constitution Center
525 Arch Street
Philadelphia, PA 19106

June 17, 2017
11:00 am – 2:00 pm

Come see our colorful and informative History Panels about Speaking For Ourselves Hear our stories! See our short & entertaining videos!

*Sponsored by the Pennsylvania Coalition Honoring People with Disabilities in Pennsylvania

Community HealthChoices (CHC) Waiver Transitions – DRP

Community HealthChoices (CHC) is a managed care program that will better coordinate the way participants receive their physical health services and long-term services and supports (LTSS) so that Pennsylvania can serve more people in their homes and their communities. CHC will serve Medicaid participants 21 years of age or older who also receive Medicare, need LTSS in their home or community, or are in nursing facilities. Today, there are five waivers in which participants receive LTSS. In the future there will be two ways.


CHC: will serve participants currently in the Aging, Attendant Care, Independence, and COMMCARE waivers. OBRA participants who are nursing facility clinically eligible will also move to CHC.

OBRA Waiver: will continue to serve participants 18 years of age and older who have a severe developmental disability requiring the level of care provided in an intermediate care facility/other related conditions (often referred to as ICF/ORC).

As CHC is phased in, there will be several steps taken to assure the individuals continue to receive services. The attached document shows the timeline of when these steps will occur.



What will happen?

·         Since CHC only serves participants 21 years of age and older, participants in the Attendant Care and Independence waivers who are between 18 to 20 years of age will be enrolled in the OBRA Waiver to receive LTSS services.

·         The OBRA Waiver will provide the same services available in Attendant Care and Independence waivers.  

·         It is DHS’ priority to ensure that participants’ services are not impacted in any way.


When will this happen?   

Southwest Zone: August 2017 to October 2017

Southeast Zone:  February 2018 to May 2018

Remaining Zones:  August 2018 to October 2018



What will happen?

·         The COMMCARE Waiver will end December 31, 2017. Any new applicants who would have been eligible for the COMMCARE Waiver after September 1, 2017, will be eligible for and enrolled in the Independence Waiver.

·         This means that participants who are receiving services in the COMMCARE Waiver who do not live in the Southwest Zone will be enrolled in the Independence Waiver before December 31, 2017. 

·         It is DHS’ priority to ensure that participants’ services are not impacted in any way.


When will this happen?   

COMMCARE Waiver participants residing outside of the Southwest Zone will be enrolled in the Independence Waiver by their service coordinators between July 2017 and November 2017.   

COMMCARE participants in the Southwest Zone will transition to CHC on January 1, 2018.



What will happen?

·         OBRA Waiver participants whose level of care determination was completed before November 18, 2016, will get an assessment to determine their eligibility for CHC. Those determined ineligible for CHC will remain in OBRA.

·         DHS is working with the Area Agencies on Aging, service coordinators, and providers to ensure assessments are completed in a timely manner. Participants will be contacted by their Area Agency on Aging to schedule a time for the assessor to meet with them to go through the assessment process. 


When will this happen?      

Southwest Zone: May 2017 to August 2017

Southeast Zone: October 2017 to February 2018

Remaining Zones: April 2018 to August 2018


*There are no additional transitions for Aging Waiver participants. Aging Waiver participants will simply transition to CHC when CHC begins in their zones.

ASAN – #ProtectOurCare

Over the past few weeks, we’ve been asking you to get involved in our fight to defend health care. Your advocacy has been amazing – you’ve called your Members of Congress, attended town halls, and taken to social media to stand up for your right to access health care. Now, we’re pleased to announce the release of a few new tools to help you contact your Members of Congress by mail.

Visit our new Postcard Center for templates and talking points that you can use to ask your Members of Congress to #ProtectOurCare. If you need more information about how to format or address your letter or postcard, check out our factsheet on writing to elected officials. Once you’ve written your message, you can make your voice go farther by spreading the word on social media – snap a picture with your postcard or letter and share it using the hashtag #ProtectOurCare.

Remember, your Members of Congress work for you. You can make a difference by letting them know how health care policy impacts your life, and reminding them that you are watching what they do next. Make sure Congress gets the message – Nothing About Us Without Us!

Let’s Speak Up! and Let’s Get to Work!

Let’s Speak Up! and Let’s Get to Work!

People with disabilities and allies are invited to join us for conversation and a Free meal!

Let’s Talk About:

Self Advocacy

Self Advocates and Advocates

Everyone’s Rights

After We Eat, Let’s Talk About:

Getting ready to work

Looking for and finding a job

Applying and Interviewing

Support and accommodations

Keeping your benefits

Who can help


When we learn new things, we are powerful!


Reserve your place by June 7th! Seats are limited!

Call Regina at 724-456-1460 OR email

Tell Regina the day and place that works best for you.

Tuesday June 13, 3:30 to 7:30 pm at Hoss’s Steak and Seafood

                           2432 PA-257, Cranberry, PA 16319


Wednesday June 14, 3:30 to 7:30 pm, Hoss’s Steak and Seafood

     18817 Smock Hwy, Meadville, PA 16335


Meet Power Coach

Sam “the Man” Maxwell

Sam has been involved with SAU1 for about 10 years now. He started back when it was under the umbrella of Vision for  Equality. He came back when SAU1 staff called him one day asking him if he wanted a job doing office work, which led him to be a power coach as well.

Right now Sam has a couple of jobs with SAU1. He does office work like laminating, shredding and other tasks at the Greenville office. He is also a power coach for the Self Advocacy Power Network for All (SAPNA) which is managed by SAU1. Sam travels to our meetings to learn material and practice his skills so he can coach others on things they need to know, like “Let’s Speak Up!” and “Let’s Get to Work!”.

Sam says he really likes working for SAU1 because it’s a good job that allows him to help other people stand up and advocate for themselves. He likes to travel as a coach to tell others his story and listen to their stories. It’s important to Sam that he makes a difference by coaching and it gets others to stand up for themselves because he stands up for himself by example.


The Self Advocacy Power Network for All (SAPNA) is funded and approved by the PA Office of Developmental Programs (ODP) and managed by Self Advocates United as 1, Inc.  Email


To download this flyer, to give to someone who may not have internet access, please click HERE.



WIPA Program Advisory Meeting Announcement

Work Incentive Planning and Assistance (WIPA)
Program Advisory Meeting Announcement

If you receive SSI/SSDI or support individuals who receive SSI/SSDI in employment, then we want to hear from you.

Come and learn about WIPA services and other community employment resources that are available. Let’s talk about how we can work together to help people receiving Social Security benefits reach their employment goals.

Come out and join us in helping people with disabilities fulfill their work goals. When all people work, everyone benefits!

WHEN: Thursday, June 8, 2017 12-3pm

WHERE: Northampton County Human Services, 2801 Emrick Blvd, Bethlehem, PA 18020

PLEASE RSVP by calling or texting (215) 980-7730 or e-mail us at by June 1, 2017. If you need any environmental or language accommodations, let us know by May 25, 2017

Envisioning the Future: Allies in Self-Advocacy

The Future of Self-Advocacy

The Administration on Intellectual and Developmental Disabilities (AIDD) is the federal agency that supports the developmental disabilities network. The network includes Developmental Disabilities Councils (DD Councils), University Centers for Excellence in Developmental Disabilities (UCEDDs), and Protection and Advocacy systems (P&As). AIDD held nine regional summits in 2011 and 2012.

The goals of the summits were to:

  1. Find out what is happening in the states on self-advocacy
  2. Make state team plans to strengthen self-advocacy
  3. Make national recommendations to strengthen self-advocacy

This is a great piece from aucdnetwork outlining the goals and path of the self-advocacy civil rights movement. This video is being featured because SAU1 attended the Columbus summit and one of our board members Carolyn Morgan is featured in this video.


*This video is being distributed freely to help disseminate information, and educate people about Self-Advocacy. SAU1 does not own this video, and all credit is given to the original author. Because this information is being distributed freely for educational purposes this would fall under fair use. You can view source citations and fair use definition HERE.

SAU1 Voting Teleconference Summary

Voting Rights

Everyone has the fundamental right to vote, and everyone has the right to get needed assistance.


Voting ID Requirements

A big voting issue recently is Voter ID Laws in Texas. On April 10, 2017, SB 14 (SB 14 is the law enacted by Texas Legislators) the District Court has once again ruled that the SB 14 law is intended to discriminate against minority voters in Texas. This ruling for SB 14 has set precedent for other states with the case law “Texas NAACP v. Steen” (consolidated with “Veasey v. Abbott”). For more information about this law CLICK HERE.

That being said, there are only 2 times when trying to vote that it is mandatory to show ID. You need to show ID when you go to vote for the first time, and you need to show ID if you go to a polling place that you have never been to before. If you have already voted in the past, and you have voted at the polling place before you do NOT have to show ID.

If you feel like you are being forced to show ID at a polling place in an illegal manner, Please call the hotline number listed below.


Polling Place Accessibility

Last week in Washington County, 39 surveys were completed for inaccessible polling places. Those surveys were sent to the state for review. If you visit a polling place and it is inaccessible for any reason please let us know. A polling place would be considered inaccessible if there is no wheel chair ramp, if it doesn’t have at least one accessible voting machine or computer, or if there is no one there to accommodate the needs of somebody with a disability.

If your polling place is inaccessible, or if one of your friends tell you their polling place is inaccessible, please call the hotline number below and report the polling place. This will help your communities by trying to get those places accessible for everyone’s needs.


Disability Rights Pennsylvania Hotline

Disability Rights Pennsylvania Hotline 1-800-692-7443